Tomorrow we are off to Toronto for the day. Adryanna has to have a CT Scan done at Sick Kids and we decided since we have to drive all the way there anyway we will make a day of it. We're planning to leave early and go to the Royal Ontario Museum in the morning. We won't be able to see everything there but will have about 2 hours to see a little bit. Her appointment is at 1:30pm and then we will have some time to wander around before having dinner with Joey. Then it will be back home.
Why does she need a CT Scan? Well we tried to tell her that they were looking for cats in her heart but she refused to believe that. The real reason? The last time we were at McMaster for her check up the cardiologist felt she was big enough and was worried that the doctor that she wants to do the repair was going to retire. She did a consult with him and he decided that while there is no rush to do the repair, he wants to start making a model for the procedure. As I think I have mentioned before Anna's defect isn't your usual heart defect. It is a fairly rare defect and while it's not causing any issues it will and it's in a funny place. They drew us a picture once of what it looks like and I wish I still had it. Usually this kind of defect comes directly off the aorta and into the left ventricle. Hers comes off the spot where her coronary artery meets her aorta. It took a lot of investigation to diagnose because the original ECHO showed like it was a coronary artery fistula. It wasn't until the second or third when her heart had grown some that they noticed this funny placement. This lead to our first trip to Sick Kids and an MRI. That was when they officially diagnosed the Aorta to Left Ventricle Tunnel. They've been following her at McMaster ever since and she is doing very well. Her left ventricle is starting to enlarge but only very slightly and they don't see any permanent damage to the heart muscle so they will continue to monitor her and with this test they will begin to make a plan for the repair. Here's hoping they decide to fix it soon before permanent damage starts. Right now she has no restrictions and I would like to keep it that way.
As always Anna is super excited for our trip and is not even worried about the test. I've never had a CT Scan but I know they are relatively quick and totally painless. She is a trooper and has no fear of doctors or hospitals. Her only worry with any doctor is that they might give her a needle. She hasn't asked this time if she will get one and I haven't mentioned it. I don't honestly know if they will so why worry her for nothing. We'll spend our morning having fun, then go for her appointment, then back to fun:)
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